We want you to join our research team!
At Sydney Vital we believe that our research will have better outcomes if we have our community involved in helping design our studies. We are currently developing a program to include greater community input into the research that we undertake.
What is Vital CPR?
At Sydney Vital, we believe that our research will have better outcomes if we have our community involved in helping design our studies. We are currently developing a program to include greater community input into the research that we undertake, which is called VITAL COMMUNITY PARTNERS in Research (VITAL CPR).
VITAL CPR meets researchers twice a year where researchers present projects to get feedback.
VITAL CPR members join The Cancer Council NSW ‘Consumers in Research’ training which covers cancer research fundamentals, research methods, ethics and governance, and the role of consumers in research projects. Training is delivered via an online course (prerequisite) and a half-day face-to-face workshop which equips consumers to work with researchers in a consumer advisor role. Click here to access the online training.
Who can be a partner?
Partners are people who have been affected by cancer – patients, survivors, carers, or close family members or friends of someone diagnosed with cancer or when conducting certain kinds of public health research, members of the general community. A partner is also usually linked to an organised group who voices the perspectives of patients as well as their carers, families, and loved ones; and has been trained to take part in research decision-making processes as a representative of the broader cancer community. Therefore, participants or patients in the research you are conducting, members of the research team, and members of an ethics committee are not considered consumers even if they have had personal experiences with cancer. (Cancer Council)
Why we want partners involved
✔ Partner involvement has been shown to help make research more relevant to community needs.
✔ Involving partners enhances transparency and accountability, by adding a different layer of independent review to peer review.
✔ Many partners have useful professional skills that can assist researchers in their project endeavours. For example, partners can often help disseminate results, or assist with participant/patient recruitments they may have a better understanding of the views of partners/patients and how they would like to be invited to participate as well as how to overcome barriers to participation. Partners can also often help reach marginalised groups in which they may have connections.
✔ Partners may be able to see practical problems that researchers cannot; this added perspective ensures the research you conduct will be understood to benefit the real world in the short or long term.
✔ Increased consultation with end-users (e.g., patients) ensures research is as suitable to the community as possible.
✔ Partner involvement in grant reviews leads to better-informed funding decisions, ensuring research is targeted towards community needs.
✔ Involving partners in research improves acceptance of research findings in the community.
✔ Due to the number of partners organisations established in recent years, partners are well-placed to reduce the gap between researchers and the wider public.
How does Vital CPR contribute?
- Acting as consumer representatives on project advisory groups
- Participating in focus groups
- Providing feedback on Sydney Vital research plan
- Providing feedback on patient information
- Website testing
- Attending relevant events
Anyone interested in being a partner should send a Vital CPR interest form below.